Welcome to my blog. My name is Lizzie and this is a diary of my Mums dementia, the people who I mention in my entries are John my husband, Michael my brother, Teresa my sister and Dib and Daph who are mums brother and sister-in-law.... It has been a hard struggle and I have written a diary all through every step of her progress deeper into the illness.




Sunday, 13 May 2012

Thursday 1st July - Friday 9th July 2010




Thursday 1st July 2010

When we got home there was a phone call on the answer phone from mums number, I heard mum say ‘there’s no one there’, I heard the carer say ‘is it the answer phone’. Then the phone was put down.

I phoned Daphs number and spoke to Andrew, he said all was fine and that Teresa had been there today

Friday 2nd July

Phoned mum and told her we would be over, When we got there I looked in the carers book and it said that mum was very confused this morning, there were also tea bags in the kettle!.

We spent a couple of hours with her, John did a bit of gardening, I checked her fridge and she had plenty of  food, she really wanted to come home with us but I didn’t feel well, so I told her that we had to go and collect something for Matt and we would come over again on Sunday.

Saturday 3rd July

Hadn’t heard anything from Michael regarding Social Services, I phoned Daph to see if she had heard anything from him, she said that she hadn’t, but she had to contact him on Wednesday as mum had gone over to her very upset saying that she hadn’t seen me and she didn’t think Teresa or Michael were going over, so he had gone over to see mum, Daph said that when mum goes over she never likes to send her home straight away even if the carer is due.

I told Daph that we had been over yesterday for a couple of hours, she said that mum had told her that she didn’t know where we were and hadn’t seen us for ages!

I texted Michael re: Social Services and he phoned me back to say he had been in contact with her and she said that she would forward mums care details onto Hartley House and it would be up to them to do their assessment for them to judge whether mum gets a place when it comes available. I said what about looking at other homes in the area, he said he didn’t really know whether we should, I asked about respite care at West View and he said that Social Services had said leave it for a while, until we know more from Hartley House, I told him that I would wait to hear from him, He was just going over to pick mum up.

Phoned Daph and relayed all that he had told me to her.

Sunday 4th July

We went over to mums early, I helped her have a bath as it was so hot, she had 2 pairs of tights on and no knickers!

I sorted out all of her clothes, hung some in her wardrobe and the put the rest in the washing machine.

I had to look for her purse, which I eventually found tucked behind a photo frame in the front room, she was very confused and asked me if she had been in her house a long time I told her 54 years! She asked me where I lived, I told her Cranbrook and told her she lived in Hawkhurst, she said ‘do I, I didn’t now that’.

Before we left we took her over to Daphs for her lunch.

Tuesday 6th July 

Got to mums just after 8am gave her breakfast and her medication, helped her have a bath and stripped her bed, John did some hovering for her and a bit of gardening, I did her shopping , she wanted to come home with us but told her we were busy, we left her with a glass of wine and watching TV.

Town and Country carers phone me in the afternoon to say that mum had told her that she was going on an outing tomorrow and was that right, I told her no but she was going to the friendship club tomorrow afternoon, cancel the Friday lunchtime carer as she will be here for lunch

Wednesday 7th July 

Phoned Daph to see how mum was today and  she said that she was very, very confused today and had forgotten completely that she was going anywhere today (friendship club) she told Andrew that she ‘was annoying herself’

Friday 9th July

Phoned mum and told her we would be over to pick her up, she sounded very down, so we went straight over and picked her up just after 8.30am, I had to help her put her clothes on the right way round!

She was very muddily and slept a lot while she was here with us, we sat in garden for a while and when we came back in she fell asleep again in the chair, she woke with a start and said that her eyeballs were falling out, then covered it by saying she was only joking.

Social Services phoned to ask if Michael had spoken to me about Respite, I said that he had told me he had phoned her and she had said that we should wait to see if she goes into Hartley House before making a decision, she said that we had lost the original dates for Respite and that Hartley House now looks unlikely as she says that someone else has the place, she gave me some new dates to choose for Respite. 1st – 10th September or 6th – 12th September or 16th for two weeks, I told her I would let her know early next week what we would do.

Talked it over with John and he said why didn’t I ask if there was anywhere else that she could go and we both felt that Social Services should help us find somewhere for mum to go and also could we also have a copy of mums care plan and a list of homes.  I tried to phone Michael on his mobile but there was no answer so phoned his home number and left a message with all the dates given by Social Services

I phone Sharon at  Social Services back but she wasn’t there so spike to the advice team and left a message for her to advise us what to do about a permanent placement for mum.      

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